I suffered debilitating pain for more than a decade before getting a diagnosis
INTIMINA release awareness campaign for endometriosis
From the moment Heledd’s periods began at 14, her monthly cycle felt debilitating.
“I was missing a lot of school,” Heledd reflected. “I was constantly ill, spewing, I would just be really faint.”
Heledd shared: “I had no energy when I was on. I have no words to explain the amount of pain that I would be in.
“I would have shooting pains down my legs. Nothing would help me. I would cry in a ball on the floor.”
Heledd knew this wasn’t right as her friends in school didn’t seem to have the same experience.
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“I went to my doctor at 15 and the doctor said you are just petite, he said just because you are small your body is feeling it more than others,” Heledd said.
And this wasn’t the only time Heledd’s condition was dismissed by medical doctors.
On future visits to the GP, Heledd was told to cut out dairy and that she was deficient in iron.
In her later teens, after years of pain, Heledd was referred for an ultrasound.
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“Everything [on the ultrasound] appeared normal. There was no cause for concern,” Heledd revealed.
“Back then I was so unaware of anything; I know now endometriosis cannot be detected on an ultrasound.”
Heledd was then referred to a gynaecologist but she came out of that appointment in tears.
“I came out of that appointment and just cried my eyes out,” Heledd shared
“I was crying, ‘Why is not nobody taking it seriously?’ It left me so heartbroken.”
Fed up, Heledd took matters into her own hands and turned to private healthcare.
Costing her £200, a private practitioner diagnosed Heledd with endometriosis.
A private scan revealed her left ovary was stuck behind her womb, as the only condition that can lead to that is endometriosis.
“From my initial ultrasound to having the surgery, I waited six weeks,” Heledd beamed to Wales Online.
“I have never felt so good in my entire life. That Christmas I was eating everything I always thought I was intolerant to,” Heledd added.
“That’s why it’s made me so passionate now, I am making girls realise it’s not normal.”
Heledd now creates videos on social media to share her experience of endometriosis to raise awareness about the condition.
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